Izzy Powell, the infant daughter of Landon Powell (who the Mets signed to a minor league contract this winter), lost her battle with hemophagocytic lymphohistiocytosis last night. Our thoughts are with Landon, his wife Allyson, their children Holden and Ellie, and their friends and family.
To read the Powells’ facebook page dedicated to Izzy, click here.
Hemophagocytic lymphohistiocytosis (HLH) is a type of histiocytic disorder. The disease is a rare disorder of the immune system that is most prevalent in infants and children. According to the Histiocytocis Association, 1 in 200,000 children are born with a form of the disease each year.
My friend’s nephew, Jack, was born with a form of the disease a few years ago, and was able to pull through. Our friends all pulled together to donate blood, put our names on bone marrow donor lists, and supported Jack and the other children any way we could. It was an incredibly rough road for Jack and his family, as it is for each child and family who are affected by histiocytosis. It’s often a day to day touch and go situation, and each child and family affected by the disease is in need of immense support.
For information about how you can help spread awareness about histiocytic disorders and/or to help fund research, please click here to visit histio.org.